| Race/Ethnicity: |
| American Indian or Alaska Native (15) |
 |
0.2% |
| Asian or Pacific Islander (212) |
|
2.87% |
| Black (310) |
|
4.2% |
| Hispanic/Latina (260) |
|
3.52% |
| White (4503) |
|
60.95% |
| Other (188) |
|
2.54% |
| No Answer Given (1915) |
|
25.92% |
| Gender: |
| Female (2081) |
|
28.17% |
| Male (8) |
|
0.11% |
| Transgender (0) |
| 0% |
| No Answer Given (5299) |
|
71.72% |
| Sexual Orientation: |
| Bisexual (40) |
|
0.54% |
| Heterosexual (2735) |
|
37.02% |
| Lesbian/Gay (32) |
|
0.43% |
| Queer (6) |
|
0.08% |
| No Answer Given (4575) |
|
61.92% |
| Relationship Status: |
| Divorced (353) |
|
4.78% |
| Married (3664) |
|
49.59% |
| Partnered (371) |
|
5.02% |
| Separated (91) |
|
1.23% |
| Single (918) |
|
12.43% |
| Widowed (30) |
|
0.41% |
| No Answer Given (1961) |
|
26.54% |
| Age at Diagnosis |
| 18 Years of age and below (14) |
|
0.19% |
| 19 to 25 (236) |
|
3.19% |
| 26 to 30 (844) |
|
11.42% |
| 31 to 35 (1609) |
|
21.78% |
| 36 to 40 (1520) |
|
20.57% |
| No Answer Given (3165) |
|
42.84% |
| How Cancer was Found |
| Felt Lump or Abnormality Accidentally (3040) |
|
41.15% |
| Mammogram (617) |
|
8.35% |
| MRI (38) |
|
0.51% |
| Nipple Discharge (119) |
|
1.61% |
| Clinical Breast Exam performed by OB/GYN (195) |
|
2.64% |
| Partner/Spouse (218) |
|
2.95% |
| Clinical Breast Exam performed by Primary Care Physician (115) |
|
1.56% |
| Regularly Perfomed Breast Self Examination(635) |
|
8.6% |
| Ultrasound(83) |
|
1.12% |
| Other (301) |
|
4.07% |
| No Answer Given (2027) |
|
27.44% |
| Initial Diagnosis Type: |
| DCIS (1048) |
|
14.19% |
| Infiltrating Ductal (2684) |
|
36.33% |
| Inflammatory (148) |
|
2% |
| Invasive Lobular (429) |
|
5.81% |
| LCIS (80) |
|
1.08% |
| Paget's Disease (20) |
|
0.27% |
| Other (582) |
|
7.88% |
| No Answer (2397) |
|
32.44% |
| Stage at Diagnosis: |
| Stage 0 (387) |
|
5.24% |
| Stage I (1259) |
|
17.04% |
| Stage IIA (1140) |
|
15.43% |
| Stage IIB (877) |
|
11.87% |
| Stage IIIA (596) |
|
8.07% |
| Stage IIIB (273) |
|
3.7% |
| Stage IV (193) |
|
2.61% |
| No Answer Given (2434) |
|
32.95% |
| Tumor Size |
| Less than 2cm (1609) |
|
21.78% |
| 2 to 5cm (935) |
|
12.66% |
| More than 5cm (472) |
|
6.39% |
| No Tumor Detected (365) |
|
4.94% |
| No Answer Given (4007) |
|
54.24% |
| Hormone and Her2 Status |
| Estrogen Receptive Negative (1497) |
|
20.26% |
| Estrogen Receptive Positive (3018) |
|
40.85% |
| HER-2/neu Negative(2247) |
|
30.41% |
| HER-2/neu Positive(1247) |
|
16.88% |
| Progesterone Receptive Negative(1496) |
|
20.25% |
| Progesterone Receptive Positive (1765) |
|
23.89% |
| No Answer Given - (2728) |
|
36.92% |
| Surgery |
| Double Mastectomy (1265) |
|
17.12% |
| Lumpectomy (2148) |
|
29.07% |
| Modified Radical Mastectomy (1434) |
|
19.41% |
| Partial Mastectomy (360) |
|
4.87% |
| Prophylactic Mastectomy (372) |
|
5.04% |
| Other (273) |
|
3.7% |
| No Surgery (373) |
|
5.05% |
| No Answer Given (1163) |
|
15.74% |
| Lymph Node Involvement |
| Yes (2371) |
|
32.09% |
| No (2414) |
|
32.67% |
| No Answer Given (2603) |
|
35.23% |
| Lymph Node Dissection Type |
| Axillary (2781) |
|
37.64% |
| Sentinel (2181) |
|
29.52% |
| None (375) |
|
5.08% |
| No Answer Given (2051) |
|
27.76% |
| Radiation Therapy |
| Yes (2407) |
|
32.58% |
| No (2396) |
|
32.43% |
| No Answer Given (2585) |
|
34.99% |
| Chemotherapy |
| Yes (3088) |
|
41.8% |
| No (915) |
|
12.38% |
| No Answer Given (3385) |
|
45.82% |
| Dose Dense Chemotherapy |
| Yes (1558) |
|
21.09% |
| No (2620) |
|
35.46% |
| No Answer Given (3210) |
|
43.45% |
| Neoadjuvant Chemotherapy |
| Yes (1191) |
|
16.12% |
| No (2880) |
|
38.98% |
| No Answer Given (3317) |
|
44.9% |
| Hormone Therapy |
| Yes (1449) |
|
19.61% |
| No (2134) |
|
28.88% |
| No Answer Given (3805) |
|
51.5% |
| Current Disease Status: |
| Advanced/metastatic (337) |
|
4.56% |
| In treatment (1719) |
|
23.27% |
| Local recurrence (102) |
|
1.38% |
| New primary (158) |
|
2.14% |
| No evidence of disease (1169) |
|
15.82% |
| No Answer Given (3903) |
|
52.83% |
| Clinical Trial Participation |
| Yes (526) |
|
7.12% |
| No Answer Given (6862) |
|
92.88% |
| Breast Reconstruction |
| Yes (2515) |
|
34.04% |
| No (1418) |
|
19.19% |
| No Answer Given (3455) |
|
46.77% |
| Type of Breast Reconstruction |
| DIEP Flap (219) |
|
2.96% |
| Lat Flap (172) |
|
2.33% |
| Saline implants (632) |
|
8.55% |
| Silicone implants (1053) |
|
14.25% |
| TRAM Flap (499) |
|
6.75% |
| Other (6) |
|
0.08% |
| No Answer (4807) |
|
65.06% |
| Children |
| Average Number of Children Born Pre-Diagnosis: |
1.1 |
| Average number of Children Born Post-Diagnosis: |
0.4 |
| None: (1798) |
|
24.34% |
| No Answer Given (2190) |
|
29.64% |
| Diagnosed During Pregnancy |
| Yes (224) |
|
3.03% |
| No (4616) |
|
62.48% |
| No Answer (2548) |
|
34.49% |
| Difficulty Conceiving After Breast Cancer Diagnosis |
| Yes (266) |
|
3.6% |
| No (133) |
|
1.8% |
| Not applicable (4387) |
|
59.38% |
| No Answer (2602) |
|
35.22% |
| Currently Trying to Conceive |
| Yes (160) |
|
2.17% |
| No (4768) |
|
64.54% |
| No Answer (2460) |
|
33.3% |
| Currently Pregnant |
| Yes (72) |
|
0.97% |
| No (5137) |
|
69.53% |
| No Answer (2179) |
|
29.49% |
| Adopted Children Post-Diagnosis |
| Yes (46) |
|
0.62% |
| No (4810) |
|
65.11% |
| No Answer (2532) |
|
34.27% |
| Premature Menopause |
| Yes (1917) |
|
25.95% |
| No (2232) |
|
30.21% |
| No Answer Given (3239) |
|
43.84% |
| Family Members Diagnosed with Breast Cancer |
| Self (2734) |
|
37.01% |
| Brother (177) |
|
2.4% |
| Sister (139) |
|
1.88% |
| Mother (668) |
|
9.04% |
| Father (23) |
|
0.31% |
| Either of Mother's Parents (828) |
|
11.21% |
| Either of Father's Parents (674) |
|
9.12% |
| Cousin(s) (365) |
|
4.94% |
| Daughter (102) |
|
1.38% |
| Son (0) |
| 0% |
| Other (836) |
|
11.32% |
| No Answer (842) |
|
11.4% |
| Any of the Above Diagnosed Before Age 50 |
| Yes (3187) |
|
43.14% |
| No (939) |
|
12.71% |
| No Answer Given (3262) |
|
44.15% |
| Family Members Diagnosed with Cancer other than Breast Cancer |
| Self (272) |
|
3.68% |
| Brother (89) |
|
1.2% |
| Sister (131) |
|
1.77% |
| Mother (460) |
|
6.23% |
| Father (730) |
|
9.88% |
| Either of Mother's Parents (1328) |
|
17.98% |
| Either of Father's Parents (1105) |
|
14.96% |
| Cousin(s) (475) |
|
6.43% |
| Daughter (5) |
|
0.07% |
| Son (5) |
|
0.07% |
| Other (671) |
|
9.08% |
| No Answer (2117) |
|
28.65% |
| Any of the Above Diagnosed Before Age 50 |
| Yes (1526) |
|
20.66% |
| No (1777) |
|
24.05% |
| No Answer Given (4085) |
|
55.29% |
| Family Member Has Tested Positive for a Genetic Mutation or Hereditary Cancer Syndrome |
| Yes (374) |
|
5.06% |
| No (3230) |
|
43.72% |
| No Answer Given (3784) |
|
51.22% |
| Referred for Genetic Counseling or Testing |
| Yes (2528) |
|
34.22% |
| No (1380) |
|
18.68% |
| No Answer Given (3480) |
|
47.1% |
| Chose to be tested for Genetic Mutation or Hereditary Cancer Syndrome |
| Yes (2528) |
|
34.22% |
| No (1380) |
|
18.68% |
| No Answer Given (3480) |
|
47.1% |
| Specialty of the Practitioner that Performed Genetic Testing |
| Certified Genetic Counselor (1401) |
|
18.96% |
| Medical Oncologist (497) |
|
6.73% |
| Nurse (127) |
|
1.72% |
| Other Physician (52) |
|
0.7% |
| Surgeon (209) |
|
2.83% |
| No Genetic Counseling Received (1249) |
|
16.91% |
| No Answer Given (3853) |
|
52.15% |
| Results of Hereditary Breast/ Ovarian Cancer Syndrome (BRCA 1/2) Test |
| Negative (1148) |
|
15.54% |
| Positive (224) |
|
3.03% |
| Don't Know (224) |
|
3.03% |
| No Answer Given (6016) |
|
81.43% |
| Results of Cowden Syndrome (PTEN) Test |
| Negative (141) |
|
1.91% |
| Positive (141) |
|
1.91% |
| Don't Know (429) |
|
5.81% |
| No Answer Given (6818) |
|
92.28% |
| Results of Li Fraumeni (TP53) Test |
| Negative (122) |
|
1.65% |
| Positive (122) |
|
1.65% |
| Don't Know (425) |
|
5.75% |
| No Answer Given (6841) |
|
92.6% |
| Actions Taken Based on Family History, Genetic Counseling or Testing |
| Enrollment in a high risk clinic (73) |
|
0.99% |
| Monthly breast self-exams/breast awareness (999) |
|
13.52% |
| Prophylactic mastectomy (495) |
|
6.7% |
| Prophylactic oophorectomy (315) |
|
4.26% |
| Regular blood tests (CA125, etc) (538) |
|
7.28% |
| Regular breast MRI's (350) |
|
4.74% |
| Regular breast ultrasounds (313) |
|
4.24% |
| Regular colonoscopy (170) |
|
2.3% |
| Regular mammograms (884) |
|
11.97% |
| Regular vaginal ultrasounds (268) |
|
3.63% |
| No Answer Given (2983) |
|
40.38% |
