| Race/Ethnicity: |
| American Indian or Alaska Native (15) |
 |
0.21% |
| Asian or Pacific Islander (206) |
|
2.87% |
| Black (298) |
|
4.15% |
| Hispanic/Latina (254) |
|
3.53% |
| White (4373) |
|
60.85% |
| Other (184) |
|
2.56% |
| No Answer Given (1871) |
|
26.04% |
| Gender: |
| Female (2077) |
|
28.9% |
| Male (8) |
|
0.11% |
| Transgender (0) |
| 0% |
| No Answer Given (5101) |
|
70.99% |
| Sexual Orientation: |
| Bisexual (38) |
|
0.53% |
| Heterosexual (2613) |
|
36.36% |
| Lesbian/Gay (32) |
|
0.45% |
| Queer (6) |
|
0.08% |
| No Answer Given (4497) |
|
62.58% |
| Relationship Status: |
| Divorced (343) |
|
4.77% |
| Married (3563) |
|
49.58% |
| Partnered (362) |
|
5.04% |
| Separated (89) |
|
1.24% |
| Single (884) |
|
12.3% |
| Widowed (28) |
|
0.39% |
| No Answer Given (1917) |
|
26.68% |
| Age at Diagnosis |
| 18 Years of age and below (14) |
|
0.19% |
| 19 to 25 (224) |
|
3.12% |
| 26 to 30 (817) |
|
11.37% |
| 31 to 35 (1570) |
|
21.85% |
| 36 to 40 (1478) |
|
20.57% |
| No Answer Given (3083) |
|
42.9% |
| How Cancer was Found |
| Felt Lump or Abnormality Accidentally (2953) |
|
41.09% |
| Mammogram (601) |
|
8.36% |
| MRI (37) |
|
0.51% |
| Nipple Discharge (118) |
|
1.64% |
| Clinical Breast Exam performed by OB/GYN (190) |
|
2.64% |
| Partner/Spouse (212) |
|
2.95% |
| Clinical Breast Exam performed by Primary Care Physician (110) |
|
1.53% |
| Regularly Perfomed Breast Self Examination(616) |
|
8.57% |
| Ultrasound(79) |
|
1.1% |
| Other (290) |
|
4.04% |
| No Answer Given (1980) |
|
27.55% |
| Initial Diagnosis Type: |
| DCIS (1020) |
|
14.19% |
| Infiltrating Ductal (2608) |
|
36.29% |
| Inflammatory (141) |
|
1.96% |
| Invasive Lobular (415) |
|
5.78% |
| LCIS (80) |
|
1.11% |
| Paget's Disease (19) |
|
0.26% |
| Other (562) |
|
7.82% |
| No Answer (2341) |
|
32.58% |
| Stage at Diagnosis: |
| Stage 0 (372) |
|
5.18% |
| Stage I (1230) |
|
17.12% |
| Stage IIA (1104) |
|
15.36% |
| Stage IIB (851) |
|
11.84% |
| Stage IIIA (587) |
|
8.17% |
| Stage IIIB (265) |
|
3.69% |
| Stage IV (183) |
|
2.55% |
| No Answer Given (2367) |
|
32.94% |
| Tumor Size |
| Less than 2cm (1577) |
|
21.95% |
| 2 to 5cm (903) |
|
12.57% |
| More than 5cm (458) |
|
6.37% |
| No Tumor Detected (354) |
|
4.93% |
| No Answer Given (3894) |
|
54.19% |
| Hormone and Her2 Status |
| Estrogen Receptive Negative (1452) |
|
20.21% |
| Estrogen Receptive Positive (2932) |
|
40.8% |
| HER-2/neu Negative(2177) |
|
30.3% |
| HER-2/neu Positive(1210) |
|
16.84% |
| Progesterone Receptive Negative(1457) |
|
20.28% |
| Progesterone Receptive Positive (1712) |
|
23.82% |
| No Answer Given - (2665) |
|
37.09% |
| Surgery |
| Double Mastectomy (1230) |
|
17.12% |
| Lumpectomy (2099) |
|
29.21% |
| Modified Radical Mastectomy (1396) |
|
19.43% |
| Partial Mastectomy (348) |
|
4.84% |
| Prophylactic Mastectomy (359) |
|
5% |
| Other (264) |
|
3.67% |
| No Surgery (353) |
|
4.91% |
| No Answer Given (1137) |
|
15.82% |
| Lymph Node Involvement |
| Yes (2310) |
|
32.15% |
| No (2342) |
|
32.59% |
| No Answer Given (2534) |
|
35.26% |
| Lymph Node Dissection Type |
| Axillary (2703) |
|
37.61% |
| Sentinel (2117) |
|
29.46% |
| None (368) |
|
5.12% |
| No Answer Given (1998) |
|
27.8% |
| Radiation Therapy |
| Yes (2360) |
|
32.84% |
| No (2304) |
|
32.06% |
| No Answer Given (2522) |
|
35.1% |
| Chemotherapy |
| Yes (2979) |
|
41.46% |
| No (885) |
|
12.32% |
| No Answer Given (3322) |
|
46.23% |
| Dose Dense Chemotherapy |
| Yes (1518) |
|
21.12% |
| No (2560) |
|
35.62% |
| No Answer Given (3108) |
|
43.25% |
| Neoadjuvant Chemotherapy |
| Yes (1162) |
|
16.17% |
| No (2809) |
|
39.09% |
| No Answer Given (3215) |
|
44.74% |
| Hormone Therapy |
| Yes (1405) |
|
19.55% |
| No (2058) |
|
28.64% |
| No Answer Given (3723) |
|
51.81% |
| Current Disease Status: |
| Advanced/metastatic (328) |
|
4.56% |
| In treatment (1669) |
|
23.23% |
| Local recurrence (100) |
|
1.39% |
| New primary (153) |
|
2.13% |
| No evidence of disease (1129) |
|
15.71% |
| No Answer Given (3807) |
|
52.98% |
| Clinical Trial Participation |
| Yes (516) |
|
7.18% |
| No Answer Given (6670) |
|
92.82% |
| Breast Reconstruction |
| Yes (2423) |
|
33.72% |
| No (1370) |
|
19.06% |
| No Answer Given (3393) |
|
47.22% |
| Type of Breast Reconstruction |
| DIEP Flap (216) |
|
3.01% |
| Lat Flap (167) |
|
2.32% |
| Saline implants (616) |
|
8.57% |
| Silicone implants (1014) |
|
14.11% |
| TRAM Flap (489) |
|
6.8% |
| Other (6) |
|
0.08% |
| No Answer (4678) |
|
65.1% |
| Children |
| Average Number of Children Born Pre-Diagnosis: |
1.1 |
| Average number of Children Born Post-Diagnosis: |
0.4 |
| None: (1740) |
|
24.21% |
| No Answer Given (2142) |
|
29.81% |
| Diagnosed During Pregnancy |
| Yes (218) |
|
3.03% |
| No (4477) |
|
62.3% |
| No Answer (2491) |
|
34.66% |
| Difficulty Conceiving After Breast Cancer Diagnosis |
| Yes (261) |
|
3.63% |
| No (130) |
|
1.81% |
| Not applicable (4251) |
|
59.16% |
| No Answer (2544) |
|
35.4% |
| Currently Trying to Conceive |
| Yes (156) |
|
2.17% |
| No (4626) |
|
64.38% |
| No Answer (2404) |
|
33.45% |
| Currently Pregnant |
| Yes (70) |
|
0.97% |
| No (4994) |
|
69.5% |
| No Answer (2122) |
|
29.53% |
| Adopted Children Post-Diagnosis |
| Yes (46) |
|
0.64% |
| No (4668) |
|
64.96% |
| No Answer (2472) |
|
34.4% |
| Premature Menopause |
| Yes (1874) |
|
26.08% |
| No (2160) |
|
30.06% |
| No Answer Given (3152) |
|
43.86% |
| Family Members Diagnosed with Breast Cancer |
| Self (2638) |
|
36.71% |
| Brother (177) |
|
2.46% |
| Sister (135) |
|
1.88% |
| Mother (647) |
|
9% |
| Father (22) |
|
0.31% |
| Either of Mother's Parents (806) |
|
11.22% |
| Either of Father's Parents (658) |
|
9.16% |
| Cousin(s) (354) |
|
4.93% |
| Daughter (102) |
|
1.42% |
| Son (0) |
| 0% |
| Other (803) |
|
11.17% |
| No Answer (844) |
|
11.75% |
| Any of the Above Diagnosed Before Age 50 |
| Yes (3085) |
|
42.93% |
| No (925) |
|
12.87% |
| No Answer Given (3176) |
|
44.2% |
| Family Members Diagnosed with Cancer other than Breast Cancer |
| Self (261) |
|
3.63% |
| Brother (83) |
|
1.16% |
| Sister (126) |
|
1.75% |
| Mother (439) |
|
6.11% |
| Father (704) |
|
9.8% |
| Either of Mother's Parents (1282) |
|
17.84% |
| Either of Father's Parents (1057) |
|
14.71% |
| Cousin(s) (460) |
|
6.4% |
| Daughter (5) |
|
0.07% |
| Son (5) |
|
0.07% |
| Other (653) |
|
9.09% |
| No Answer (2111) |
|
29.38% |
| Any of the Above Diagnosed Before Age 50 |
| Yes (1468) |
|
20.43% |
| No (1716) |
|
23.88% |
| No Answer Given (4002) |
|
55.69% |
| Family Member Has Tested Positive for a Genetic Mutation or Hereditary Cancer Syndrome |
| Yes (361) |
|
5.02% |
| No (3107) |
|
43.24% |
| No Answer Given (3718) |
|
51.74% |
| Referred for Genetic Counseling or Testing |
| Yes (2434) |
|
33.87% |
| No (1335) |
|
18.58% |
| No Answer Given (3417) |
|
47.55% |
| Chose to be tested for Genetic Mutation or Hereditary Cancer Syndrome |
| Yes (2434) |
|
33.87% |
| No (1335) |
|
18.58% |
| No Answer Given (3417) |
|
47.55% |
| Specialty of the Practitioner that Performed Genetic Testing |
| Certified Genetic Counselor (1350) |
|
18.79% |
| Medical Oncologist (480) |
|
6.68% |
| Nurse (123) |
|
1.71% |
| Other Physician (49) |
|
0.68% |
| Surgeon (199) |
|
2.77% |
| No Genetic Counseling Received (1208) |
|
16.81% |
| No Answer Given (3777) |
|
52.56% |
| Results of Hereditary Breast/ Ovarian Cancer Syndrome (BRCA 1/2) Test |
| Negative (1090) |
|
15.17% |
| Positive (218) |
|
3.03% |
| Don't Know (218) |
|
3.03% |
| No Answer Given (5878) |
|
81.8% |
| Results of Cowden Syndrome (PTEN) Test |
| Negative (132) |
|
1.84% |
| Positive (132) |
|
1.84% |
| Don't Know (413) |
|
5.75% |
| No Answer Given (6641) |
|
92.42% |
| Results of Li Fraumeni (TP53) Test |
| Negative (116) |
|
1.61% |
| Positive (116) |
|
1.61% |
| Don't Know (408) |
|
5.68% |
| No Answer Given (6662) |
|
92.71% |
| Actions Taken Based on Family History, Genetic Counseling or Testing |
| Enrollment in a high risk clinic (72) |
|
1% |
| Monthly breast self-exams/breast awareness (964) |
|
13.41% |
| Prophylactic mastectomy (481) |
|
6.69% |
| Prophylactic oophorectomy (309) |
|
4.3% |
| Regular blood tests (CA125, etc) (532) |
|
7.4% |
| Regular breast MRI's (331) |
|
4.61% |
| Regular breast ultrasounds (303) |
|
4.22% |
| Regular colonoscopy (166) |
|
2.31% |
| Regular mammograms (847) |
|
11.79% |
| Regular vaginal ultrasounds (263) |
|
3.66% |
| No Answer Given (2918) |
|
40.61% |
